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[11 Nov 2009|06:02am] |
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[10 Nov 2009|06:03am] |
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[09 Nov 2009|06:03am] |
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[04 Nov 2009|10:14am] |
Last night, I sat and watched/read the poll results as they came in. I saw in disbelief people in this state reject gay marriage. I watched the numbers creep in, and became more and more sick as they did.
I am disappointed in my state, the people in it. How can you be so cold? Does equality mean nothing to you? Do you really not think that everyone should be treated equal? Shouldn't mariage be more about love then what genders the couples are? And why should you even have a say as to whether someone can get married or not? What gives you that right anyways? How can you take away a right that everyone should be able to have? Do you not care how many hearts you are breaking? You know, when it comes right down to it, I think that's part of the problem. I really think you don't care. You're selfish. As long as it doesn't effect you, you just really don't care.
I've never been so ashamed to be from Maine. But rest assured, I DID #VoteNoOn1.
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| October 13, 2003 |
[19 Oct 2009|10:13am] |
October 19, 2003. It was a bit over a month into my freshman year of High School, and it was the day my life would change forever.
It was my best friend's birthday. She had been going through a really hard time lately, and I was hoping that our birthday plans would cheer her up.It was a Sunday, so we had no school, but we agreed that I'd come over early and we'd get ready together. I went to her house, and knocked on the door. All I heard was screaming. Scared, I opened the door and went inside. There, I found her mother in hysterics. I asked what was wrong. She couldn't even speak, she just handed me a piece of paper.
I took the paper and hurriedly read what it said. I dropped to the floor and cried. It was a suicide note from my best friend. Apparently, her mom had found her upstairs only moments before I arrived. I couldn't believe it. I was in shock. Even though I knew her mother would never do such a thing, I still thought she was playing some kind of horrible, cruel joke on me. But of course, she wasn't.
I broke down. I just couldn't take it. My best friend was gone. The one who was always there. The one who helped me through everything. The one who always seemed so strong. The one who was always so happy. The one who had taught me so much about life, and had helped shape me into who I was. Gone. It wasn't fair. If she wasn't living, why should I? I have to admit, for a while after her death, I tried to follow in her footsteps.
Its been 6 years now, and the pain still hasn't ceased. To be honest, I don't think it ever will. I still have emotions of guilt, wondering why I couldn't save her.I'm still mad at myself for not knowing the situation was that bad and for not helping her. I still wonder why. But most of all, I just miss her and wish more then anything that she was still here.
And for those of you who say that I care too much, or am overbearing, maybe now you will know why. Having gone through this, it has made me very protective of my friends, and made me always try to help everyone, no matter what the situation. See, I am scared. I'm scared that it will happen again someday. It has taught me that you can never expect something like this. So THAT is why I am the way I am today.
RIP love, you will always have a special place in my heart, and I will never forget you. Without you having been here, I wouldn't be the person I am today. I can't wait to be with you again someday. I love you and miss you more then anything.
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[16 Oct 2009|03:23pm] |
Well, I don't really know where to start here, but I guess I'm gonna start with Saturday. By Saturday, I was mostly recovered from the flu, but I was having horrible horrible pains in my legs, and it was more like nerve pain, completely with burning, tingling, etc. It was really bad and I didn't know what to do about it. I dealt with it on Saturday, but mainly because I just hoped it would go away because I didn't want to go the ER, because they usually just dismiss everything as fibro anyways.
But on Sunday, I woke up and it was even worse, and I just couldn't take it anymore, so I ended up in the ER anyways. The doctor said it did seem like nerve pain but he didn't know what to do for it since I was already on Lyrica. I basically told him that obviously the Lyrica wasn't working right and there had to be SOMETHING he could do. So then reluctantly (I say this because thats how he sounded) prescribed Neurontin. I went to Rite Aid to get it filled, and made sure I double checked with the pharmacist to make sure I could take both Lyrica and Neurontin at the same time, and it all checked out ok. So I started taking it that night, and woah what a difference! The pain got much better along with the other symptoms, and it even helped me sleep!
So on Tuesday, (Remember, Monday was a holiday) I called my neurologist's office to tell him about all that had happened. He didn't think it was necessary for me to be on both medications, and since he apparently likes Lyrica better, he decided to just up that. I wasn't very happy with that decision since the Neurontin seemed to be helping more, so I called yet again, and he finally agreed.
Tuesday night, I stop taking Lyrica and took Neurontin instead. Wednesday I slept most of the day, but don't really think much of it because that happens sometimes with my fibro flares. However, when I did end up being awake that evening, I was horribly depressed/anxious and wasn't even really sure why. And it was really bad, like including crying fits. And then I was like that on Thursday most of the day too. WTF?
Same with today. But today Dan and I realized that it must be the stopping of the Lyrica, and then it's like a withdrawal or something of some sort. I don't know. But its really bad, and tonight I just decided I couldn't take it anymore and took a Lyrica to see if the theory was correct. It was. I feel much better now, still upset about the same things as I was, but I'm not a wreck at all. Not sure what I am going to do about this for the rest of the weekend, but I know for a fact that I am calling my doctor next week to see what can be done.
Well, there's the update on my life. Hope all is well <3
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[04 Oct 2009|03:22pm] |
Yet again, I am not feeling life lately, but this time its because I have managed to come down with the flu. And trust me, the flu plus fibro is absolutely horrible and really just makes you wanna curl up in a ball and die. Or maybe that last part is just me. Who knows?
But anyway, I am currently on day 5 of this horrible thing and I def don't feel any better at all. And this is the weirdest flu I've ever had.The symptoms change, come and go, etc. In my memory, I've never had something like that. But I've had all the worst symptoms. Fever, headache, congestion, coughing, sore throat, dizziness, weakness, pain, stomachache, etc. You name it and I've prolly had it. And I'm pretty sure its making my fibro act up more too.
I'm pumping in the antioxidants, the vitamin c, other supplements, and fluids but nothing seems to help. I have not felt any better from day to day, and during some parts of the day I feel worse. Like I said, its a weird strain I have here.
To make matters worse, Dan is sick too, and we both have the hardest time getting things done. And I've had to take time off work, which absolutely sucks because we need the money. I'm supposed to go back tomorrow, and I think I'm going to even if I'm at death's door. We need the money that badly.
Ok I'm off. Sorry for the complaining. And sorry for any typos, I did this via my blackberry.
<3
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[29 Sep 2009|03:13pm] |
Ok. So here is an update on I've been feeling and such lately.
The Savella has been interesting. When I first went up to full dose, I had weird side effects, and what I called a "shifty" feeling. It was a really horrible day. But it got better and started to go away, so I felt better and continued the dose.
I feel like the Savella is helping with the pain. I really do. It was rainy here the past couple of days and even that didn't make immense pain like it usually does. It could be a coincedence, but I really don't think it is. And even on normal days, I don't feel as much pain. I am still sore, but not really in pain as much, if that makes any sense.
The problem I have found with stopping the Cymbalta to switch to Savella though has been my emotions. I'm like a rollercoaster. Not an extreme one though. But sometimes I just seem to get really anxious or whatever, and up freaking out/crying. I've always had anxiety though, and I think the Cymbalta was helping it. The Buspar I'm on doesn't seem to do much of anything for my anxiety anymore. But I don't like these random crying "fits," they aren't like me at all.
So there's the update on how I've been feeling and such. Have a doctor appointment tomorrow. Dr. Winn wants to check my fibro tender points and see if the Savella is helping, and he is gonna give me some free samples of it to save me money. I'm so glad he's so good with giving me samples!
That's it for now...hope everyone is doing well! <3
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[21 Sep 2009|03:03pm] |
I'm so bad at updating this blog lately. I'm just so exhausted and don't ever seem to have the time or energy to do it. But it's been long enough now, so here it goes.
I got a job. I'm now a Sales Associate at Toys R Us. As far as that type of job goes, it's pretty cool, and I absolutely love the people I work with. Everyone is good friends and talks and jokes and whatnot. Makes the work environment much better, especially compared to my last job at East Coast Marketing. The only downside though is that it is EXHAUSTING me. I feel dead after every shift, and usually end up feeling sick during work. I get so tired. And tonight, my pain has been extreme. But there really isn't much I can do about it. We need the money, so I have to endure.
My doctor has put me on Savella, which I'm hoping will make some kind of difference. So far I'm not on the normal dosage yet, I'm still on the increasing dosages. Or however you word that. I haven't noticed too much change yet, though I haven't felt any negative side effects either, so that's a plus. I just hope it really does make some sort of positive difference, because honestly, I'm going crazy.
I'm also really upset that my facebook group hasn't taken off like I had hoped for it too. Don't get me wrong, many people have joined, but donations are at a minimum. I know times are hard, but I'm just so frustrated. I really really really want/need this treatment, and I just have no way of getting it. I'm not mad at anyone, just at the situation. I don't feel like its fair that I can't get the treatment that I need in order to live my life.
Well, that's it for now. Just a short update.
<3 you all!
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| Complaining |
[12 Sep 2009|01:01pm] |
Ok, so this post needs to be done, because I can't stop complaining lately it seems, so maybe if I get it out on here, it will help me shut up about it! lol.
But seriously, I just haven't been feeling life lately. I feel so crappy most of the time, whether its extreme fatigue, extreme pain, or both. I feel like my body and my life is not my own anymore. It's like it has been taken over by some horrible creature or something. I have so many ambitions for things I want to do, and then never ever seem to have the energy to complete them. Sometimes even simple things like getting out of bed is too much for me. What kind of life is this? Seriously, what did I do to deserve such a horrible thing happening to me?
I'm not one who wants people to feel sorry for me, or to pity me, I'm really not. But sometimes I just wish people would understand. People just don't understand what its like. And so many people think that its just all in our heads. I WISH! I wish it was something all in my head so that I could just go to a psychiatrist, get counseling and medication, and then it would all be gone! That's so much better then knowing you have to live with this for the rest of your life.
And while I'm on that topic, isn't that just a cheery thought? I have no real hope for this to get better or to go away. I try to remain hope that they will find a cure or just an effect treatment in my lifetime, but really, what if they don't? I have to live like this the rest of my life? How is that even living? I know I sure don't feel like I'm living most of the time.
I want help, and I need help. I need to go see specialists. Too bad that the closest one to me is forever away and not covered by insurance. No way in this world I can afford that. So oh well. I'm just stuck. Stuck living a life that I don't want. Honestly, all I really want is my life back, is that really too much to ask?
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| When You See Me - Fibro Poem |
[05 Sep 2009|12:59pm] |
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WHEN YOU SEE ME written May 2003 When you see me on a "good day" I may look as if nothing's wrong, But I, myself, am very aware That the energy won't last long. You may think that I am lazy, Or I just don't like to try, Or maybe I am just depressed, When sometimes you see me cry. You may not understand me, It's not easy to explain, The struggles that I so often endure, As I live each day in pain. People may offer their opinions, Thinking that I just need some advise, Yet they don't really comprehend, Although they are trying to be nice. What for some may be so easy, Is almost impossible to me, But because I may look healthy, Many around me fail to see. Perhaps it seems that I'm sloppy, If I would only take more pride, It's sad that many don't stop to see, The person who is inside. Planning things is so hard to do, With each day uncertain fate, The best that I can do is try, And oftentimes I have to wait. Life can be so stressful, Even when you have your health, Many people cannot even imagine, Giving up their dreams and wealth. While some people may worry, How to fit everything into each day, Others of us must struggle, To even find a way. So often misunderstood, Some say that is must be "in my head," Yet there are days that it takes all I have To even get out of bed. You'd think that if one is weary, Then why not just take a nap, But the fatigue at times is so severe, That nothing seems to help. I guess it would be a better thing, If there were a little more support, Everyone longs for acceptance and love, As they keep their life in sort. If I could make the world aware, Help them to see things in a new light, Be careful on what they base their view, That they may receive a new insight. Then maybe when someone else comes along, Who is going through something unknown, They may not feel so hopeless and scared, And will know that they're not alone. Whether it be a terminal thing, Or something chronic with no known cure, There are many processes that will be faced In this we can rest assured. The grieving over loss is hard, Whatever the loss may be. What may be just a bump for you, Could seem like a mountain to me. For I faithfully trust in God above, And no matter what the future may bring, I know that He is holding my hand, And He's in control of EVERYTHING.
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[30 Aug 2009|01:01pm] |
Ok, so I suppose its time for a new update, since it's been awhile.
Last week was pretty much same 'ol same 'ol. I ended up going to First Care at Maine Med for my knee on Wednesday night. They took x-rays and such and couldn't find anything. The doctor then did an exam, and he said that he thought I had bruised the bone. They wrapped it in an ace bandage, told me it would be 2-3 days til it felt better, and then sent me on my way. Oh man was I in pain.
We got notice from Dan's insurance company that his car was totalled. Not good news at all. So on Thursday we went up to Richmond to get everything out of it, which was actually alot of stuff. I didn't even realize we had that much stuff in his car! And man was that painful on my knee doing all of that work. But Dan was good as usual and didn't make me do more then I felt I could handle. Unfortunately, what I "thought I could handle" was more then what I really could.
We then went to South China for a couple of days since we were right there anyways. We stayed until Saturday and then came back to Portland. During which, my knee was still killing me, and the ace bandage wasn't helping any....in fact I feel like it was making it worse because it was cutting into the skin. (And I didn't even have it that tight!)
This morning I woke up and my knee hurt even WORSE. And it had been 4 days. I knew something wasn't right, so I decided to go back and see another doctor, because I just wasn't ok. So we went to Mercy's FirstCare and saw a doctor. She said the other doctor WAS right, that is a bruised bone, but that it def wouldn't heal within 2-3 days. She said it may be a few weeks. She then gave me a knee immobilizer to use and crutches to use in extreme circumstances. I'm glad that it was nothing serious, and that this doctor had a clue. But man oh man, the pain is so extreme and I don't have anything for it. It's worse then my fibro pain I think. But then again it's hard to tell, because it is probably both acting up.
Sooo on Wednesday I have a doctor appointment. After talking to some people, I have decided that I am SO going to put my foot down and demand a referral to a pain specialist. I don't care that he thinks I don't need to see one. I have been in so much pain for so long now, and none of the fibro meds seem to be helping, so I NEED to do something. And as much as I would hate to do so, if he doesn't oblige I will start looking for another doctor, although like I said, I would hate it if it came down to that.
Well, I guess thats it for now. I hope everyone is doing well! <3
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[25 Aug 2009|12:58pm] |
So let's see, what is new in my life?
Well, the heat nearly killed me. I felt so sick, and I passed out numerous times. Luckily, it rained this weekend and that cooled me down some. One night, Dan and I went for a walk in the rain in the park. It was amazing, and it made me feel so much better.
I went to the neurologist on Monday, and that wasn't a huge help. But seriously, why am I surprised? He did up my Lyrica though...I'm now on 225mg twice a day. I wonder if it will help? I feel like nothing ever does. I've been in so much pain lately and so tired. My knee has still been bothering me. I fell on it like 2 weeks ago, and it still bothers me alot. I don't know if I actually did some sort of damage or not, but it def feels like it.
Umm. Mike and Shawn came to visit today, and that was nice. Our friendships have been strained numerous times, but its still there, and thats always a good thing. I really do miss them on occasion, so it was really nice to see them and catch up and everything. And reminscing about old times. As much as I love the present, sometimes I really do miss the past. Sometimes I really wish I could go back. But I do love the present. Ah. It's hard to explain.
I am going to take some classes at SMCC this semester. I am taking some online classes because attendance is really hurting my grades, and with online classes I can do my work even if I am sick in bed. So I think its a good plan. Because I really don't want to give up school, no matter how hard it really is most of the time.
Ok, thats it for now. <3
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[20 Aug 2009|12:57pm] |
Soooo I left off with Friday night being in South China after the car accident. For those of you who didn't see, here is what the car looked like after the accident:
So as you can see, that was pretty horrific. Anyways, the rest of the weekend in South China was alright. It was nice to be there, because I have so many memories of my childhood days there, but it wasn't very relaxing this time, even though that was what I truly needed. My dad just doesn't seem to grasp the concept that I am actually sick, and that I really can't do everything he expects me to do. Everytime I was trying to rest, he'd get me up and have me do something. It got quite annoying quite fast, and it really didn't help my fibro any, that's for sure. But on the positive side of life, I did get to see some friends and family that I don't get to see very often, and of course, that's always nice.
Mom came back to Portland with us so we would have a car and could get places. Her, Jackie, and I went to the mall one day, and that was fun. It was like a girls' day which is always nice. Other then that, we didn't get too much accomplished, but what did we need to get done?
The heat is killing me. It makes me feel so sick and just so blah. I literally can't take it. It's been way too much for me lately. I passed out again last night, but thankfully I didn't hit my head or anything this time. I guess there is a positive in every situation, lol.
Job search is going alright. I have some interviews lined up and such, so hopefully something works out, and hopefully I can find something that I can handle with this damn fibro! Gotta love it....only not.
I feel like I probably have alot more to say, but I just don't have the energy for now, so I'm gonna end this here.
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[14 Aug 2009|12:53pm] |
Thursday was an ok day. I went to that job interview, and I think it went pretty well, but I still don't feel very confident about it. I didn't realize it from the ad, but its a really high-end luxury store. And I just think it wouldn't be a good fit for me, nor am I sure I could deal with such a stuffy environment. Idk, we'll wait and see if I actually get a position and worry about it then. In the meantime, I'm applying for more jobs.
Other then that, Thursday was a pretty quiet day, which was actually quite nice.
This morning I got up and went to my Reiki session. It was amazing as always. I can't get over how much better it always makes me feel, and Leslie herself is just amazing as well. She's so helpful and so great to talk to. After that, Dan and I started packing for our weekend in South China.
We got on the road and things were going fine. We were a bit over halfway there when things changed. We were just driving along on the highway and there was a car fully stopped ahead of us. No matter how hard we tried, we just could not stop in time. The brakes were slammed on but it still just wasn't enough. We hit the car in front of us which happened to be a big pickup truck. Luckily by then, we were not going TOO fast. The impact was still strong though, but luckily we weren't hurt.
To make a long story short, the towing guy took us to the garage too, and my mom came to pick us up and brought us back to South China. So now we are here, trying to make the best out of what's left of our weekend away, and trying to relax a bit before we have to deal with everything on Monday.
Well, I'm off, I'm beyond exhausted! Maybe I will actually get some sleep tonight?!
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